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Pediatric Collections: Adolescent Health Care Part 3: Transition of Care
By
American Academy of Pediatrics
American Academy of Pediatrics
Search for other works by this author on:
American Academy of Pediatrics
ISBN electronic:
978-1-61002-709-0
ISBN print:
978-1-61002-708-3
Publication date:
July 2023
In Part 3 of this 3-part series, we focus on the importance of transitioning young adult patients to adult care to ensure their optimal health and well-being into adulthood. The articles in this section bring to light the unique needs of these adolescents and how to better help them and their families navigate this time of transition. Available to purchase at https://www.aap.org/Pediatric-Collections-Adolescent-Health-Care-Part-3-Transition-of-Care-Paperback
Pediatric Collections: Adolescent Health Care Part 3: Transition of Care
By: American Academy of Pediatrics
https://doi.org/10.1542/9781610027090
ISBN (print): 978-1-61002-708-3
ISBN (electronic): 978-1-61002-709-0
Publisher: American Academy of Pediatrics
Published: 2023
Download citation file:
Table of Contents
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Part 3: Transition of Care, Introductionp3-4ByMargaret Stager, MD, FAAP;Margaret Stager, MD, FAAPChair of AAP Section on Adolescent Health Executive Committee; Professor of Pediatrics; Director, Division of Adolescent and Young Adult Medicine; MetroHealth Medical Center, Cleveland, OhioSearch for other works by this author on:Elizabeth Alderman, MD, FAAP, FSAHMElizabeth Alderman, MD, FAAP, FSAHMChair, AAP Committee on Adolescence: Professor of Pediatrics, Professor of Obstetrics & Gynecology and Women’s Health, Albert Einstein College of Medicine; Chief, Division of Adolescent Medicine, The Children’s Hospital at Montefiore, Bronx, NYSearch for other works by this author on:
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Health Care Transitions for Adolescentsp5-9ByMatthew J. Meyers, MD;Matthew J. Meyers, MDaDivision of Adolescent and Young Adult Medicine, Department of Pediatrics, University of California San Francisco, San Francisco, CaliforniaSearch for other works by this author on:Charles E. Irwin, Jr, MD, FAAPCharles E. Irwin, Jr, MD, FAAPaDivision of Adolescent and Young Adult Medicine, Department of Pediatrics, University of California San Francisco, San Francisco, CaliforniaSearch for other works by this author on:
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Transitioning Patients With Complex Health Care Needs to Adult Practices: Theory Versus Realityp10-13BySheldon Berkowitz, MD, FAAP;Sheldon Berkowitz, MD, FAAPChildren’s Minnesota, Minneapolis, MinnesotaSearch for other works by this author on:Pat Lang, BSPat Lang, BSChildren’s Minnesota, Minneapolis, MinnesotaSearch for other works by this author on:
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Practical Steps to Help Transition Pediatric Patients to Adult Carep14-17ByLaura C. Hart, MD, MPH;Laura C. Hart, MD, MPHaNationwide Children’s Hospital, Columbus, OhiobDepartment of Pediatrics, College of Medicine, The Ohio State University, Columbus, OhioSearch for other works by this author on:Marie Crawford;Marie CrawfordcParent of 2 sons with disabilitiesSearch for other works by this author on:Peter Crawford;Peter CrawforddYoung adult with Down syndrome and Mrs Crawford’s sonSearch for other works by this author on:Garey Noritz, MDGarey Noritz, MDaNationwide Children’s Hospital, Columbus, OhiobDepartment of Pediatrics, College of Medicine, The Ohio State University, Columbus, OhioSearch for other works by this author on:
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Improving Care and Service Delivery for Autistic Youths Transitioning to Adulthoodp18-19ByPaul Shattuck, PhD;Paul Shattuck, PhDaMathematica, Washington, DCSearch for other works by this author on:Lindsay Shea, DrPH, MSLindsay Shea, DrPH, MSbAJ Drexel Autism Institute, Drexel University, Philadelphia, PennsylvaniaSearch for other works by this author on:
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A Residency Program Curriculum to Improve Health Care Transitions for Autistic Individualsp20-26ByPriyanka Fernandes, MBBS, MPH;Priyanka Fernandes, MBBS, MPHaDivision of Medicine-Pediatrics, Departments of MedicineSearch for other works by this author on:Jason Timmerman, BA;Jason Timmerman, BAaDivision of Medicine-Pediatrics, Departments of MedicineSearch for other works by this author on:Emily Hotez, PhD;Emily Hotez, PhDaDivision of Medicine-Pediatrics, Departments of MedicineSearch for other works by this author on:Madeline Haley, BS;Madeline Haley, BSaDivision of Medicine-Pediatrics, Departments of MedicineSearch for other works by this author on:Angela Reyes, MPH;Angela Reyes, MPHcFielding School of Public Health, University of California, Los Angeles, Los Angeles, CaliforniaSearch for other works by this author on:Frederick Ferguson, MD;Frederick Ferguson, MDbFamily MedicineSearch for other works by this author on:Alice Kuo, MD, PhDAlice Kuo, MD, PhDaDivision of Medicine-Pediatrics, Departments of MedicinecFielding School of Public Health, University of California, Los Angeles, Los Angeles, CaliforniaSearch for other works by this author on:
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Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsyp27-80ByGarey Noritz, MD, FAAP, FACP;Garey Noritz, MD, FAAP, FACPaNationwide Children's Hospital, The Ohio State University, Columbus, OhioSearch for other works by this author on:Lynn Davidson, MD, FAAP;Lynn Davidson, MD, FAAPbThe Children's Hospital at Montefiore, Albert Einstein College of Medicine, Bronx, New YorkSearch for other works by this author on:Katherine Steingass, MD, FAAPKatherine Steingass, MD, FAAPaNationwide Children's Hospital, The Ohio State University, Columbus, OhioSearch for other works by this author on:
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Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to Adulthoodp81-90ByEva Goossens, PhD, RN;Eva Goossens, PhD, RNaDepartment of Public Health and Primary Care, KU Leuven-University of Leuven, Leuven, BelgiumbResearch Foundation Flanders, BelgiumSearch for other works by this author on:Lore Bovijn, MSc, RN;Lore Bovijn, MSc, RNcChild & Family, Brussels, BelgiumSearch for other works by this author on:Marc Gewillig, MD, PhD;Marc Gewillig, MD, PhDdDepartment of Paediatric CardiologySearch for other works by this author on:Werner Budts, MD, PhD;Werner Budts, MD, PhDeDivision of Congenital and Structural Cardiology, University Hospitals Leuven, KU Leuven-University of Leuven, Leuven, BelgiumSearch for other works by this author on:Philip Moons, PhD, RNPhilip Moons, PhD, RNaDepartment of Public Health and Primary Care, KU Leuven-University of Leuven, Leuven, BelgiumfThe Heart Centre, Copenhagen University Hospital, Copenhagen, DenmarkgInstitute of Health and Care Sciences, University of Gothenburg, Gothenburg, SwedenSearch for other works by this author on:
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Perceptions of Health Care Transition Care Coordination in Patients With Chronic Illnessp91-98ByMonika Lemke, MPH;Monika Lemke, MPHaDivision of Adolescent and Young Adult MedicinebCenter for Translational ScienceSearch for other works by this author on:Rachel Kappel, BSEd;Rachel Kappel, BSEdaDivision of Adolescent and Young Adult MedicinebCenter for Translational ScienceSearch for other works by this author on:Robert McCarter, ScD;Robert McCarter, ScDbCenter for Translational SciencecDivision of Biostatistics and Informatics, Children’s Research Institute, Children’s National Health System, Washington, District of ColumbiaSearch for other works by this author on:Lawrence D’Angelo, MD, MPH;Lawrence D’Angelo, MD, MPHaDivision of Adolescent and Young Adult MedicinebCenter for Translational ScienceSearch for other works by this author on:Lisa K. Tuchman, MD, MPHLisa K. Tuchman, MD, MPHaDivision of Adolescent and Young Adult MedicinebCenter for Translational ScienceSearch for other works by this author on:
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Young Adults With Chronic Illness: How Can We Improve Transitions to Adult Care?p99-101ByJohn C. Berens, MD;John C. Berens, MDUniversity of Pennsylvania Internal Medicine/Pediatrics Residency Program, Philadelphia, PennsylvaniaSearch for other works by this author on:Sophia Jan, MD;Sophia Jan, MDUniversity of Pennsylvania Internal Medicine/Pediatrics Residency Program, Philadelphia, PennsylvaniaSearch for other works by this author on:Dava Szalda, MD;Dava Szalda, MDUniversity of Pennsylvania Internal Medicine/Pediatrics Residency Program, Philadelphia, PennsylvaniaSearch for other works by this author on:Christina M. Hanna, MDChristina M. Hanna, MDUniversity of Pennsylvania Internal Medicine/Pediatrics Residency Program, Philadelphia, PennsylvaniaSearch for other works by this author on:
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Preparation for Transition to Adult Care Among Medicaid-Insured Adolescentsp102-110ByGregory S. Sawicki, MD, MPH;Gregory S. Sawicki, MD, MPHaDivisions of General Pediatrics, Boston Children’s Hospital, Boston, MassachusettsbDivisions of Respiratory Diseases, Boston Children’s Hospital, Boston, MassachusettscDepartment of Pediatrics, Harvard Medical School, Boston, MassachusettsSearch for other works by this author on:Katharine C. Garvey, MD, MPH;Katharine C. Garvey, MD, MPHaDivisions of General Pediatrics, Boston Children’s Hospital, Boston, MassachusettscDepartment of Pediatrics, Harvard Medical School, Boston, MassachusettsdDivisions of Endocrinology, Boston Children’s Hospital, Boston, MassachusettsSearch for other works by this author on:Sara L. Toomey, MD, MPhil, MPH, MSc;Sara L. Toomey, MD, MPhil, MPH, MScaDivisions of General Pediatrics, Boston Children’s Hospital, Boston, MassachusettscDepartment of Pediatrics, Harvard Medical School, Boston, MassachusettsSearch for other works by this author on:Kathryn A. Williams, MS;Kathryn A. Williams, MSeDivisions of Clinical Research Center, Boston Children’s Hospital, Boston, MassachusettsSearch for other works by this author on:J. Lee Hargraves, PhD;J. Lee Hargraves, PhDfAmerican Institutes for Research, Waltham, MassachusettsSearch for other works by this author on:Thomas James, MD;Thomas James, MDgBaptist Health, Lexington, KentuckySearch for other works by this author on:Jean L. Raphael, MD, MPH;Jean L. Raphael, MD, MPHhDepartment of Pediatrics, Baylor College of Medicine, Houston, TexasSearch for other works by this author on:Angelo P. Giardino, MD, PhD, MPH;Angelo P. Giardino, MD, PhD, MPHhDepartment of Pediatrics, Baylor College of Medicine, Houston, TexasSearch for other works by this author on:Mark A. Schuster, MD, PhD;Mark A. Schuster, MD, PhDaDivisions of General Pediatrics, Boston Children’s Hospital, Boston, MassachusettscDepartment of Pediatrics, Harvard Medical School, Boston, MassachusettsSearch for other works by this author on:Jonathan A. Finkelstein, MD, MPHJonathan A. Finkelstein, MD, MPHaDivisions of General Pediatrics, Boston Children’s Hospital, Boston, MassachusettscDepartment of Pediatrics, Harvard Medical School, Boston, MassachusettsSearch for other works by this author on:
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Transition to Adult Health Care and the Need for a Pregnant Pausep111-113ByRebecca E. Sadun, MD, PhD;Rebecca E. Sadun, MD, PhDaDepartments of Medicine, Duke Health, Durham, North CarolinabDepartments of Pediatrics, Duke Health, Durham, North CarolinaSearch for other works by this author on:Richard J. Chung, MD;Richard J. Chung, MDaDepartments of Medicine, Duke Health, Durham, North CarolinabDepartments of Pediatrics, Duke Health, Durham, North CarolinaSearch for other works by this author on:Gary R. Maslow, MD, MPHGary R. Maslow, MD, MPHbDepartments of Pediatrics, Duke Health, Durham, North CarolinacDepartments of Psychiatry, Duke Health, Durham, North CarolinaSearch for other works by this author on:
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Transition of Care from Pediatric to Adult Surgeryp114-116ByDavid H. Rothstein, MD, MS;David H. Rothstein, MD, MSaWomen and Children's Hospital of Buffalo, Buffalo, New YorkbUniversity at Buffalo Jacobs School of Medicine and Biomedical Sciences, Buffalo, New YorkSearch for other works by this author on:Roshni Dasgupta, MD, MPHRoshni Dasgupta, MD, MPHcCincinnati Children's Hospital Medical Center, Cincinnati, OhioSearch for other works by this author on:
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Evaluating Continuity During Transfer to Adult Care: A Systematic Reviewp117-128ByAntoine Rachas, MD, MPH;Antoine Rachas, MD, MPHaCenter for Research in Epidemiology and Population Health, UMR 1018, INSERM, Paris-Sud University, Versailles Saint-Quentin-en-Yvelines University, Villejuif, FrancebDepartment of Epidemiology and Public Health, Paris-Sud University HospitalcParis Sud University, Le Kremlin-Bicêtre, FranceSearch for other works by this author on:Delphine Lefeuvre, MD, MPH;Delphine Lefeuvre, MD, MPHdDepartment of Social Epidemiology, INSERM, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Épidémiologie et de Santé Publique (IPLESP UMRS 1136), Paris, FranceSearch for other works by this author on:Laurence Meyer, MD, PhD;Laurence Meyer, MD, PhDaCenter for Research in Epidemiology and Population Health, UMR 1018, INSERM, Paris-Sud University, Versailles Saint-Quentin-en-Yvelines University, Villejuif, FrancebDepartment of Epidemiology and Public Health, Paris-Sud University HospitalcParis Sud University, Le Kremlin-Bicêtre, FranceSearch for other works by this author on:Albert Faye, MD, PhD;Albert Faye, MD, PhDeGeneral Pediatrics, Robert Debré Hospital, Assistance Publique-Hôpitaux de Paris, Paris, FrancefParis 7 Denis Diderot University, Sorbonne Paris Cité, Paris, FrancegINSERM UMR 1123, Paris, FranceSearch for other works by this author on:Nizar Mahlaoui, MD, MSc, MPH;Nizar Mahlaoui, MD, MSc, MPHhFrench National Reference Center for Primary Immune DeficienciesiPediatric Immuno-Hematology and Rheumatology Unit, Necker Enfants Malades University HospitaljINSERM UMR 1163, Laboratory of Human Genetics of Infectious Diseases, Necker Branch, Paris, FrancekParis Descartes University, Sorbonne Paris Cité, Paris, FranceSearch for other works by this author on:Elise de La Rochebrochard, PhD;Elise de La Rochebrochard, PhDaCenter for Research in Epidemiology and Population Health, UMR 1018, INSERM, Paris-Sud University, Versailles Saint-Quentin-en-Yvelines University, Villejuif, FrancelInstitut National d’Etudes Démographiques, Paris, FranceSearch for other works by this author on:Josiane Warszawski, MD, PhD;Josiane Warszawski, MD, PhDaCenter for Research in Epidemiology and Population Health, UMR 1018, INSERM, Paris-Sud University, Versailles Saint-Quentin-en-Yvelines University, Villejuif, FrancebDepartment of Epidemiology and Public Health, Paris-Sud University HospitalcParis Sud University, Le Kremlin-Bicêtre, FranceSearch for other works by this author on:Pierre Durieux, MD, MPHPierre Durieux, MD, MPHkParis Descartes University, Sorbonne Paris Cité, Paris, FrancemDepartment of Informatics and Public Health, Georges Pompidou European Hospital, Paris, FrancenINSERM Cordeliers Research Center UMRS 872, Paris Descartes University, Paris, FranceSearch for other works by this author on:
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Transitional Care Interventions for Youth With Disabilities: A Systematic Reviewp129-140ByBen B. Levy, BSc;Ben B. Levy, BScaToronto Rehabilitation Institute, Toronto, Ontario, CanadaSearch for other works by this author on:Jessica Z. Song;Jessica Z. SongaToronto Rehabilitation Institute, Toronto, Ontario, CanadaSearch for other works by this author on:Dorothy Luong, MSc;Dorothy Luong, MScaToronto Rehabilitation Institute, Toronto, Ontario, CanadaSearch for other works by this author on:Laure Perrier, PhD;Laure Perrier, PhDbUniversity of Toronto LibrariesSearch for other works by this author on:Mark T. Bayley, MD, FRCPC;Mark T. Bayley, MD, FRCPCaToronto Rehabilitation Institute, Toronto, Ontario, CanadacInstitute of Health Policy, Management and EvaluationfDivision of Physical MedicineSearch for other works by this author on:Gail Andrew, MDCM, FRCPC;Gail Andrew, MDCM, FRCPCjDepartment of Pediatrics, University of Alberta, Edmonton, Alberta, CanadaSearch for other works by this author on:Kelly Arbour-Nicitopoulos, PhD;Kelly Arbour-Nicitopoulos, PhDeFaculty of Kinesiology and Physical EducationkHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, CanadaSearch for other works by this author on:Brian Chan, PhD;Brian Chan, PhDaToronto Rehabilitation Institute, Toronto, Ontario, CanadacInstitute of Health Policy, Management and EvaluationSearch for other works by this author on:Cynthia J. Curran, BHA, MA Leadership, CHE;Cynthia J. Curran, BHA, MA Leadership, CHEkHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, CanadaSearch for other works by this author on:Gina Dimitropoulos, PhD, RSW;Gina Dimitropoulos, PhD, RSWlFaculty of Social Work, University of Calgary, Calgary, Alberta, CanadaSearch for other works by this author on:Laura Hartman, PhD, MScOT;Laura Hartman, PhD, MScOTkHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, CanadaSearch for other works by this author on:Lennox Huang, MD, FAAP, CPE;Lennox Huang, MD, FAAP, CPEgDepartments of PaediatricsmThe Hospital for Sick Children, Toronto, Ontario, CanadaSearch for other works by this author on:Monika Kastner, PhD;Monika Kastner, PhDcInstitute of Health Policy, Management and EvaluationhFamily and Community MedicinenNorth York General Hospital, Toronto, Ontario, CanadaSearch for other works by this author on:Shauna Kingsnorth, PhD;Shauna Kingsnorth, PhDdRehabilitation Sciences InstitutekHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, CanadaSearch for other works by this author on:Anna McCormick, MD, FRCPC, PhD;Anna McCormick, MD, FRCPC, PhDoDepartment of Pediatrics, University of Ottawa, Ottawa, Ontario, CanadapChildren’s Hospital of Eastern Ontario, Ottawa, Ontario, CanadaandSearch for other works by this author on:Michelle Nelson, PhD;Michelle Nelson, PhDcInstitute of Health Policy, Management and EvaluationqSinai Health System, Toronto, Ontario, CanadaSearch for other works by this author on:David Nicholas, PhD, RSW;David Nicholas, PhD, RSWlFaculty of Social Work, University of Calgary, Calgary, Alberta, CanadaSearch for other works by this author on:Melanie Penner, MD, FRCPC;Melanie Penner, MD, FRCPCcInstitute of Health Policy, Management and EvaluationgDepartments of PaediatricskHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, CanadaSearch for other works by this author on:Laura Thompson, MScOT;Laura Thompson, MScOTkHolland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, CanadaSearch for other works by this author on:Alene Toulany, MD, FRCPC;Alene Toulany, MD, FRCPCgDepartments of PaediatricsmThe Hospital for Sick Children, Toronto, Ontario, CanadaSearch for other works by this author on:Amanda Woo, MScPT, MHScHA, CHE;Amanda Woo, MScPT, MHScHA, CHEaToronto Rehabilitation Institute, Toronto, Ontario, CanadaSearch for other works by this author on:Joanne Zee, BScPT, MSc, MCPA;Joanne Zee, BScPT, MSc, MCPAaToronto Rehabilitation Institute, Toronto, Ontario, CanadacInstitute of Health Policy, Management and EvaluationSearch for other works by this author on:Sarah E.P. Munce, PhDSarah E.P. Munce, PhDaToronto Rehabilitation Institute, Toronto, Ontario, CanadacInstitute of Health Policy, Management and EvaluationiOccupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, CanadaSearch for other works by this author on:
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Transition Planning Among US Youth With and Without Special Health Care Needsp141-151ByLydie A. Lebrun-Harris, PhD, MPH;Lydie A. Lebrun-Harris, PhD, MPHaHealth Resources and Services Administration, Maternal and Child Health Bureau, Rockville, MarylandSearch for other works by this author on:Margaret A. McManus, MHS;Margaret A. McManus, MHSbThe National Alliance to Advance Adolescent Health and Got Transition, Washington, DCSearch for other works by this author on:Samhita M. Ilango, MSPH;Samhita M. Ilango, MSPHbThe National Alliance to Advance Adolescent Health and Got Transition, Washington, DCSearch for other works by this author on:Mallory Cyr, MPH;Mallory Cyr, MPHcCommunity Living Office, Colorado Department of Health Care Policy and Financing, Denver, ColoradoSearch for other works by this author on:Sarah Beth McLellan, MPH;Sarah Beth McLellan, MPHaHealth Resources and Services Administration, Maternal and Child Health Bureau, Rockville, MarylandSearch for other works by this author on:Marie Y. Mann, MD, MPH;Marie Y. Mann, MD, MPHaHealth Resources and Services Administration, Maternal and Child Health Bureau, Rockville, MarylandSearch for other works by this author on:Patience H. White, MD, MAPatience H. White, MD, MAbThe National Alliance to Advance Adolescent Health and Got Transition, Washington, DCSearch for other works by this author on:
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The Transition Journey: Time to Systematically Address Transition Planning to Adult Health Carep152-153ByMegumi J. Okumura, MD, MASMegumi J. Okumura, MD, MASDepartments of Pediatrics and Internal Medicine, University of California, San Francisco, San Francisco, CaliforniaSearch for other works by this author on:
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Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Homep154-173ByPatience H. White, MD, MA, FAAP, FACP;Patience H. White, MD, MA, FAAP, FACPaGot Transition/The National Alliance to Advance Adolescent Health and Department of Medicine and Pediatrics, School of Medicine and Health Sciences, George Washington University, Washington, District of ColumbiaSearch for other works by this author on:W. Carl Cooley, MD, FAAPW. Carl Cooley, MD, FAAPbDepartment of Pediatrics, Geisel School of Medicine, Dartmouth College, Hanover, New HampshireSearch for other works by this author on:
