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The diagnosis of an anatomic abnormality in an infant during the perinatal period can be devastating for a family. From the time a concern is raised, the parent or parents, who have been anticipating the birth of a normal, healthy newborn, must contend with a series of uncertainties. They must comprehend the meaning of the child’s diagnosis and adjust to the reality that the infant and the parents’ prospects for parenthood may be different from what had been expected. Individual families handle this crisis in different ways. The infant’s primary care physician may need to assume varying roles to assist...

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