Marfan syndrome is an inherited condition. It affects the tissues that connect parts of the body.

One in 5,000 people in the United States have Marfan syndrome. It affects boys, girls, and people of all races equally. It is inherited in three-quarters of cases, but some cases are new in a family.

Some children with Marfan syndrome might need to avoid vigorous physical activity, but normal play is encouraged. They can have loose joints and might get hand pain after pro-longed grasping of writing tools such as crayons. If the child has vision problems, he or she might need special glasses or accommodations (see Visual Impairments Quick Reference Sheet). Ask the child’s doctor if he or she needs any restrictions on activities such as blowing up balloons.

Visual Impairments

National Heart, Lung, and Blood Institute: “What is Marfan syndrome?”, www.nhlbi.nih.gov/health-topics/marfan-syndrome

Source: Managing Chronic Health Needs in Child Care and Schools:...

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