The Gulf State Pediatric Palliative Care Consortium formed in January 2019, and our most important focus currently is to transform pediatric hospice care in LA. It came to our attention in March 2019 that the Medicaid manual for pediatric concurrent care hospice benefit language changed, which caused thoughtful dialogue in our hospice community. Concurrent Care Hospice Benefit for children was made available by our Affordable Care Act in 2010. Concurrent Care means that seriously ill children who are <21 years of age and have a 6-month prognosis are entitled to receiving a hospice benefit in addition to all necessary disease-directed therapies with the goal of providing access to comprehensive care to live as long and as well as possible. This benefit ensures that parents are never forced to make a decision to stop life-prolonging therapies in order to receive quality care at home from an interdisciplinary hospice team focused on...

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