Since its inception in 2010, the Concurrent Care for Children Provision of the Affordable Care Act has enabled seriously ill pediatric patients and their families to access comprehensive, supportive hospice services while simultaneously receiving ongoing treatment-directed therapies. Although this groundbreaking federal legislation has resulted in improvements in care for vulnerable pediatric patients, the implementation of the law has varied from state to state through Medicaid programming. The pediatric professional community is called to consider how Medicaid services can more effectively be delivered by leveraging legislative mandates and collaborative relationships between clinicians, Medicaid administrators, and policy makers. In this article, we examine ways concurrent care has been executed in 3 different states and how key stakeholders in care for children with serious illness advocated to ensure effective implementation of the legislation. The lessons learned in working with state Medicaid programs are applicable to any advocacy issue impacting children and families .
Changing Pediatric Hospice and Palliative Care Through Medicaid Partnerships
POTENTIAL CONFLICT OF INTEREST: The authors have no conflicts of interest relative to this article to disclose.
FINACIAL DISCLOSURE: The authors have indicated they have no financial relationships relevant to this article to disclose.
- Views Icon Views
- Share Icon Share
- Search Site
Khaliah A. Johnson, Alexis Morvant, Kristin James, Lisa C. Lindley; Changing Pediatric Hospice and Palliative Care Through Medicaid Partnerships. Pediatrics November 2021; 148 (5): e2021049968. 10.1542/peds.2021-049968
Download citation file: