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Volume 146, Issue Supplement_1

August 2020

ISSN 0031-4005

EISSN 1098-4275

In this Issue

Supplement Article

Defining Moments in Pediatric Bioethics: Future Insights From Past Controversies

Supplement Article

Title Page

View articletitled, Title Page

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Introduction: Defining Cases in Pediatric Bioethics

Aaron Wightman, MD, MA; Douglas Diekema, MD, MPH

Extract

View articletitled, Introduction: Defining Cases in Pediatric Bioethics

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Topics: bioethics

"The Hopkins Mongol Case": The Dawn of the Bioethics Movement

Norman Fost, MD, MPH

Abstract

View articletitled, "The Hopkins Mongol Case": The Dawn of the Bioethics Movement

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Topics: bioethics , disability , down syndrome , congenital atresia of duodenum

Who Is the Next “Baby Doe?” From Trisomy 21 to Trisomy 13 and 18 and Beyond

Jennifer C. Kett, MD, MA

Abstract

View articletitled, Who Is the Next “Baby Doe?” From Trisomy 21 to Trisomy 13 and 18 and Beyond

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Topics: down syndrome , patau's syndrome , quality of life

Uncertainty: An Uncomfortable Companion to Decision-making for Infants

Jeanne A. Krick, MD, MA; Jacob S. Hogue, MD; Tyler R. Reese, MD; Matthew A. Studer, MD

Abstract

View articletitled, Uncertainty: An Uncomfortable Companion to Decision-making for Infants

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Topics: decision making , patient prognosis

Adolescent Brain Development and Medical Decision-making

Douglas S. Diekema, MD, MPH

Abstract

View articletitled, Adolescent Brain Development and Medical Decision-making

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Topics: brain , brain development , decision making , principles of law and justice

When Does A Minor’s Legal Competence To Make Health Care Decisions Matter?

Lois A. Weithorn, PhD, JD

Abstract

View articletitled, When Does A Minor’s Legal Competence To Make Health Care Decisions Matter?

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Topics: consent, parental , decision making , principles of law and justice , statutes and laws

Ethical Issues Raised by the Media Portrayal of Adolescent Transplant Refusals

Lainie Friedman Ross, MD, PhD

Abstract

View articletitled, Ethical Issues Raised by the Media Portrayal of Adolescent Transplant Refusals

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Topics: decision making , transplantation , transplanted organ , ethics , organ transplantation

An Organ for My Child: Public Appeals for Limited Resources

Aaron Wightman, MD, MA; Michael Freeman, MD, MA

Abstract

View articletitled, An Organ for My Child: Public Appeals for Limited Resources

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Topics: transplantation

Public Appeals Challenging Criteria for Pediatric Organ Transplantation

Aviva M. Goldberg, MD, MA

Abstract

View articletitled, Public Appeals Challenging Criteria for Pediatric Organ Transplantation

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Topics: congenital absence of limb , organ transplantation , transplantation , advocacy , donors

The Charlie Gard Case, and the Ethics of Obstructing International Transfer of Seriously Ill Children

Dominic Wilkinson, MBBS, DPhil

Abstract

View articletitled, The Charlie Gard Case, and the Ethics of Obstructing International Transfer of Seriously Ill Children

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Topics: ethics , transfer technique

Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean

Lainie Friedman Ross, MD, PhD

Abstract

View articletitled, Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean

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Topics: best interest standard , atlantic ocean

The Suffering Child: Claims of Suffering in Seminal Cases and What To Do About Them

Annie B. Friedrich, MA

Abstract

View articletitled, The Suffering Child: Claims of Suffering in Seminal Cases and What To Do About Them

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Topics: ambiguity , decision making , pain , quality of life , ventilators, mechanical

Pediatric Suffering and the Burden of Proof

Tyler Tate, MD, MA

Abstract

View articletitled, Pediatric Suffering and the Burden of Proof

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Topics: conceptualization , decision making , ethics , judgment , masks

Defining Death: Lessons From the Case of Jahi McMath

Robert D. Truog, MD, MA

Abstract

View articletitled, Defining Death: Lessons From the Case of Jahi McMath

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Topics: brain death , ventilators, mechanical

Jahi McMath: Lessons Learned

Maya Scott, MSW

Abstract

View articletitled, Jahi McMath: Lessons Learned

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Topics: brain death , palliative care

Ferguson v. City of Charleston Redux: Motivated Reasoning and Coercive Interventions in Pregnancy

Mary Faith Marshall, PhD; Julia Taylor, MD, MA; Debra DeBruin, PhD

Abstract

View articletitled, Ferguson v. City of Charleston Redux: Motivated Reasoning and Coercive Interventions in Pregnancy

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Topics: coercion , pregnancy , prenatal care , reasoning , substance use disorders

Protection Versus Progress: The Challenge of Research on Cannabis Use During Pregnancy

Katherine E. MacDuffie, PhD; Natalia M. Kleinhans, PhD; Kaeley Stout, BA; Benjamin S. Wilfond, MD

Abstract

View articletitled, Protection Versus Progress: The Challenge of Research on Cannabis Use During Pregnancy

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Topics: cannabis , marijuana , nausea and vomiting , pregnancy

Table of Contents

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Defining Moments in Pediatric Bioethics: Future Insights From Past Controversies

Supplement Article

Title Page

Introduction: Defining Cases in Pediatric Bioethics

"The Hopkins Mongol Case": The Dawn of the Bioethics Movement

Who Is the Next “Baby Doe?” From Trisomy 21 to Trisomy 13 and 18 and Beyond

Uncertainty: An Uncomfortable Companion to Decision-making for Infants

Adolescent Brain Development and Medical Decision-making

When Does A Minor’s Legal Competence To Make Health Care Decisions Matter?

Ethical Issues Raised by the Media Portrayal of Adolescent Transplant Refusals

An Organ for My Child: Public Appeals for Limited Resources

Public Appeals Challenging Criteria for Pediatric Organ Transplantation

The Charlie Gard Case, and the Ethics of Obstructing International Transfer of Seriously Ill Children

Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean

The Suffering Child: Claims of Suffering in Seminal Cases and What To Do About Them

Pediatric Suffering and the Burden of Proof

Defining Death: Lessons From the Case of Jahi McMath

Jahi McMath: Lessons Learned

Ferguson v. City of Charleston Redux: Motivated Reasoning and Coercive Interventions in Pregnancy

Protection Versus Progress: The Challenge of Research on Cannabis Use During Pregnancy

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Defining Moments in Pediatric Bioethics: Future Insights From Past Controversies

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