Families of children with complex, chronic, and/or life-limiting conditions experience unmet psychological, emotional, practical, and spiritual needs. Primary care pediatricians may lack sufficient knowledge, training, and/or resources to address these needs; pediatric palliative care teams can offer additional support services to families.

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Imagine 2 parents, Amy and Todd, sitting in a room in the pediatric intensive care unit. Their formerly healthy 2-month-old son, Jack, was recently diagnosed as having spinal muscular atrophy (SMA) type 1 during an admission for respiratory failure secondary to respiratory syncytial virus. He is now extubated and pain free, and his parents have met with the intensivist, neurologist, and pulmonologist regarding what SMA is and how Jack’s life will be affected. For the parents, many questions remain: How will we cope with the changes that are happening in our life? How will we afford the specialized care...

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