Practical Steps Common to the SDM Process
| • Acknowledge that a decision is at hand and needs to be made |
| • Identify salient stakeholders and formulate an equality of partners for the process |
| • Present, without bias, the spectrum of treatment options reasonably available |
| o Review risks and benefits of the options being considered |
| o Present at appropriate cognitive/developmental level for the child |
| • Investigate the child’s/family’s understanding and expectations of the decision |
| • Identify preferences and priorities of all parties actively involved |
| • “Negotiate” evenly and with sensitivity the aspects without early concordance |
| • Reach a decision for action |
| • Arrange follow-up or a revisiting of the decision to ensure closure |
| • See Supplemental Information 1 for tools and strategies to support discussions with families, such as “Ask-Tell-Ask,” “Tell Me More,” and others |
| • Acknowledge that a decision is at hand and needs to be made |
| • Identify salient stakeholders and formulate an equality of partners for the process |
| • Present, without bias, the spectrum of treatment options reasonably available |
| o Review risks and benefits of the options being considered |
| o Present at appropriate cognitive/developmental level for the child |
| • Investigate the child’s/family’s understanding and expectations of the decision |
| • Identify preferences and priorities of all parties actively involved |
| • “Negotiate” evenly and with sensitivity the aspects without early concordance |
| • Reach a decision for action |
| • Arrange follow-up or a revisiting of the decision to ensure closure |
| • See Supplemental Information 1 for tools and strategies to support discussions with families, such as “Ask-Tell-Ask,” “Tell Me More,” and others |
Modified with permission from Kriston L, Scholl I, Hölzel L, Simon D, Loh A, Härter M. The 9-item Shared Decision Making Questionnaire (SDM-Q-9): development and psychometric properties in a primary care sample. Patient Educ Couns. 2010;80(1):94–99.