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TABLE 2

Cross-sectional Demographic and Clinical Profile of Patients With SB and Distribution of Surgical Procedures and Health Outcomes; From the NSBPR, 2009–2013 (n = 3801 Patients With Complete Surgical Procedure Data)

VariableOverall, n (%)Myelomeningocele, n (%)Nonmyelomeningocele, n (%)
Age distribution, y    
 <5 1165 (30.7) 931 (29.5) 234 (36.5) 
 5–9 780 (20.5) 623 (19.7) 157 (24.5) 
 10–14 709 (18.7) 599 (19.0) 110 (17.1) 
 15–19 603 (15.9) 511 (16.2) 92 (14.3) 
 20–24 221 (5.8) 194 (6.1) 27 (4.1) 
 ≥25 323 (8.5) 301 (9.5) 22 (3.4) 
 Total 3801 (100) 3159 (83.1) 642 (16.9) 
Sex    
 Female 1992 (52.4) 1640 (51.9) 352 (54.8) 
 Male 1809 (47.6) 1519 (48.1) 290 (45.2) 
 Total 3801 (100) 3159 (83.1) 642 (16.9) 
Race and/or ethnicity    
 Non-Hispanic white 2492 (65.6) 2107 (66.7) 385 (60.0) 
 Non-Hispanic African American 295 (7.8) 265 (8.4) 30 (4.7) 
 Hispanic or Latino 758 (19.9) 613 (19.4) 145 (22.6) 
 Other 245 (6.5) 163 (5.2) 82 (12.8) 
 Refused or unknown 11 (0.3) 11 (0.4) 0 (0.0) 
 Total 3801 (100) 3159 (83.1) 642 (16.9) 
Type and No. surgical procedures reported in all visits    
 Neurologic 11 133 (58.9) 10 269 (59.5) 864 (53.1) 
 Orthopedic 2936 (15.5) 2666 (15.4) 270 (16.6) 
 Urologic 1823 (9.7) 1651 (9.6) 172 (10.6) 
 Gastrointestinal 1076 (5.7) 942 (5.5) 134 (8.2) 
 Skin 989 (5.2) 890 (5.2) 99 (6.1) 
 Other 934 (4.9) 847 (4.9) 87 (5.4) 
 Total 18 891 (100) 17 265 (91.4) 1626 (8.6) 
Prevalence of key outcomesa status reported at last visit    
 Fecal incontinence 1453 (59.4) 1091 (63.0) 362 (43.0) 
 Urinary incontinence 1482 (58.6) 1106 (62.5) 376 (40.8) 
 Skin breakdown 754 (16.2) 692 (18.3) 62 (7.0) 
 Non ambulator 1204 (28.5) 1171 (34.3) 33 (4.1) 
VariableOverall, n (%)Myelomeningocele, n (%)Nonmyelomeningocele, n (%)
Age distribution, y    
 <5 1165 (30.7) 931 (29.5) 234 (36.5) 
 5–9 780 (20.5) 623 (19.7) 157 (24.5) 
 10–14 709 (18.7) 599 (19.0) 110 (17.1) 
 15–19 603 (15.9) 511 (16.2) 92 (14.3) 
 20–24 221 (5.8) 194 (6.1) 27 (4.1) 
 ≥25 323 (8.5) 301 (9.5) 22 (3.4) 
 Total 3801 (100) 3159 (83.1) 642 (16.9) 
Sex    
 Female 1992 (52.4) 1640 (51.9) 352 (54.8) 
 Male 1809 (47.6) 1519 (48.1) 290 (45.2) 
 Total 3801 (100) 3159 (83.1) 642 (16.9) 
Race and/or ethnicity    
 Non-Hispanic white 2492 (65.6) 2107 (66.7) 385 (60.0) 
 Non-Hispanic African American 295 (7.8) 265 (8.4) 30 (4.7) 
 Hispanic or Latino 758 (19.9) 613 (19.4) 145 (22.6) 
 Other 245 (6.5) 163 (5.2) 82 (12.8) 
 Refused or unknown 11 (0.3) 11 (0.4) 0 (0.0) 
 Total 3801 (100) 3159 (83.1) 642 (16.9) 
Type and No. surgical procedures reported in all visits    
 Neurologic 11 133 (58.9) 10 269 (59.5) 864 (53.1) 
 Orthopedic 2936 (15.5) 2666 (15.4) 270 (16.6) 
 Urologic 1823 (9.7) 1651 (9.6) 172 (10.6) 
 Gastrointestinal 1076 (5.7) 942 (5.5) 134 (8.2) 
 Skin 989 (5.2) 890 (5.2) 99 (6.1) 
 Other 934 (4.9) 847 (4.9) 87 (5.4) 
 Total 18 891 (100) 17 265 (91.4) 1626 (8.6) 
Prevalence of key outcomesa status reported at last visit    
 Fecal incontinence 1453 (59.4) 1091 (63.0) 362 (43.0) 
 Urinary incontinence 1482 (58.6) 1106 (62.5) 376 (40.8) 
 Skin breakdown 754 (16.2) 692 (18.3) 62 (7.0) 
 Non ambulator 1204 (28.5) 1171 (34.3) 33 (4.1) 
a

We report negative outcomes in this section of the table to facilitate risk comparisons.

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