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TABLE 1

RAM Participant Characteristics

CharacteristicsRAM Research Topic Development Survey (N = 269)RAM Expert Panel (N = 24)
n (%)n (%)
Female sex 189 (70) 15 (63) 
Age, y   
 18–44 89 (33) 6 (25) 
 45–54 67 (25) 6 (25) 
 55+ 88 (32) 12 (50) 
 Not answered 25 (9) 
States represented   
 No. unique states represented by participants 41a 15 
Race and/or ethnicity   
 White 214 (80) 16 (67) 
 African American 7 (3) 
 American Indian or Alaskan native 2 (1) 
 Asian American 13 (5) 4 (17) 
 Native Hawaiian or Pacific Islander 1 (0) 
 Hispanic 6 (2) 2 (8) 
 Multiracial or other 13 (5) 2 (8) 
 Not answered 13 (5) 
Relationship to CYSHCNb   
 CYSHCN 3 (1) 
 Parent or family member 61 (23) 6 (25) 
 Advocate, child or family 45 (17) 5 (21) 
 Health care professional 197 (73) 22 (92) 
Health care professional roleb   
 Primary care 76 (28) 9 (38) 
 Specialty care 71 (26) 5 (21) 
 Behavioral health or therapist 25 (10) 2 (8) 
 Administrator 20 (7) 4 (16) 
 Policy 16 (6) 8 (33) 
 Researcher 40 (15) 17 (71) 
 Otherc 43 (16) 8 (33) 
CharacteristicsRAM Research Topic Development Survey (N = 269)RAM Expert Panel (N = 24)
n (%)n (%)
Female sex 189 (70) 15 (63) 
Age, y   
 18–44 89 (33) 6 (25) 
 45–54 67 (25) 6 (25) 
 55+ 88 (32) 12 (50) 
 Not answered 25 (9) 
States represented   
 No. unique states represented by participants 41a 15 
Race and/or ethnicity   
 White 214 (80) 16 (67) 
 African American 7 (3) 
 American Indian or Alaskan native 2 (1) 
 Asian American 13 (5) 4 (17) 
 Native Hawaiian or Pacific Islander 1 (0) 
 Hispanic 6 (2) 2 (8) 
 Multiracial or other 13 (5) 2 (8) 
 Not answered 13 (5) 
Relationship to CYSHCNb   
 CYSHCN 3 (1) 
 Parent or family member 61 (23) 6 (25) 
 Advocate, child or family 45 (17) 5 (21) 
 Health care professional 197 (73) 22 (92) 
Health care professional roleb   
 Primary care 76 (28) 9 (38) 
 Specialty care 71 (26) 5 (21) 
 Behavioral health or therapist 25 (10) 2 (8) 
 Administrator 20 (7) 4 (16) 
 Policy 16 (6) 8 (33) 
 Researcher 40 (15) 17 (71) 
 Otherc 43 (16) 8 (33) 
a

All but 9 states (Alaska, Arkansas, Connecticut, Hawaii, Idaho, Maine, Nebraska, Nevada, and West Virginia) had at least 1 respondent.

b

Self-identified; respondents were allowed to pick as many as applied.

c

Roles identified in “other” included funder, public health professional, community-based services, and advocates.

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