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TABLE 3

RAM Round 2 Result Summary

ThemeNo. TopicsResearch Topics With Median Rating >7
Need and UrgencyResearch ImpactFamily Centered
Caregiving at home and caregiving experience 11 
Technology and care 11 
Access to services and supports (health system and community) 14 
Financing, payment models, and insurance 12 
Medical home and comprehensive care models 10 
Care planning and coordination 
Child health, vulnerability, and complexity 15 
Family caregiver health 
CYSHCN research methods innovations 
Total 96 14 10 47 
ThemeNo. TopicsResearch Topics With Median Rating >7
Need and UrgencyResearch ImpactFamily Centered
Caregiving at home and caregiving experience 11 
Technology and care 11 
Access to services and supports (health system and community) 14 
Financing, payment models, and insurance 12 
Medical home and comprehensive care models 10 
Care planning and coordination 
Child health, vulnerability, and complexity 15 
Family caregiver health 
CYSHCN research methods innovations 
Total 96 14 10 47 

. Research topics were generated from synthesized and aggregated open-ended survey responses, following an ongoing, consensus-seeking approach. Conceptually similar research topics were sorted into themes. Each research topic was rated using three rating domains, corresponding to perceived (1) need and urgency, (2) research impact, and (3) family centeredness. Each domain was rated by using a 9-point Likert scale: 1 to 3 (low) was used when a research topic represented a rating domain to a low degree; 4 to 6 was used when a research topic represented an uncertain rating domain; and 7 to 9 (high) was used when a research topic represented a domain to a high degree.

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