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TABLE 9

Suggestions to Improve Communication About Clinical Trials

Ensure the presence of a nurse 
Read the consent document with the parents, explicitly soliciting questions and allocating sufficient time to answer them 
Provide time to process the information, including taking the consent document home overnight 
Provide written and video explanations 
Provide information in the family's native language when possible 
Provide names and contact information for practioners who can offer independent, competent second opinions 
Conduct a daily education conference to allow information to be incrementally processed 
Ensure the presence of a nurse 
Read the consent document with the parents, explicitly soliciting questions and allocating sufficient time to answer them 
Provide time to process the information, including taking the consent document home overnight 
Provide written and video explanations 
Provide information in the family's native language when possible 
Provide names and contact information for practioners who can offer independent, competent second opinions 
Conduct a daily education conference to allow information to be incrementally processed 

Data were adapted from Kodish et al.244 

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