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TABLE 4

Selection of Representative Parent Quotes on Engaging in ADHD Treatment Stage 2: Stigmatization and Fear (“I’m Being Judged”)

SubcategoryStigmatization and Fear Quotes (Representative Selection)Parent and Child Information
Others blaming or judging parent and/or child “When I’m talking to other people, I feel like I’m being judged…even if they’re not saying it…cause they’ll say something stupid like, ‘Why don’t you do this? Why don’t you…?’ You don’t understand what I’m going through right now, so don’t tell me what I should and should not do.” 42-y-old mother of a 13-y-old boy 
 “Sometimes I feel like I am being blamed, or I’m not…according to other people…I’m not parenting correctly, because she can’t control herself.” 40-y-old mother of a 3-y-old girl 
 “A lot of people it’s like, ‘Oh, you spoil her. You let her do this, you let her do that.’ That’s the only thing I got judged about. It’s letting her get away with things – ‘There were no boundaries in the home.’” 28-y-old mother of an 6-y-old girl 
 “I feel bad because, even though no one has ever told me this, I know that people tend to reject people who suffer from it.” 34-y-old mother of a 10-y-old boy 
 “They started blaming him for everything.… My son is like this because now he’s used to being blamed for anything and everything, and it does not matter what he says. He always gets shut down.” 36-y-old mother of an 8-y-old boy 
Parent blaming themselves or child “It was difficult and scary, because I don’t know. You think, as a mom, that you did something wrong. What are people going to say? Are you sure? You just can’t handle how they are at their age like normal kids. What’s really wrong? You don’t really want to be told that they have ADHD or anything like that.” 29-y-old mother of an 8-y-old boy 
 “For the longest time, because we didn’t know what was going on, we kind of blamed her…I thought she was just being a stubborn kid, and I’m like, ‘Why are you being so…why can’t you just listen?’… you know.” 43-y-old mother of a 9-y-old girl 
 “Sometimes I used to blame myself. Well, maybe it’s because of me because he got ADHD. So, that really just sat on my brain. I really went through some problems with that. He has ADHD because of me.” 51-y-old mother of a 17-y-old boy 
Facing negative attitudes about ADHD treatment “Well they were saying ADHD basically, is a fake diagnosis. That’s sort of like some things they were saying…that was sort of the negative things they were saying.” 28-y-old mother of a 6-y-old girl 
 “The biggest thing was the medications because you start hearing things. They will outgrow it, they don’t want to listen. I’ve heard it all.” 36-y-old mother of an 8-y-old boy 
 “It was what everyone told me. ‘Do not give him medication that is used here so that the teachers do not have too much work from all the children so they want to give him medicine.’” 40-y-old mother of an 8-y-old boy 
 “That’s the main fear. Even in the beginning I was on edge with my son being on the medication. There have been studies that show doctors are quick to give African American children medication for this and that.” 30-y-old mother of a 12-y-old boy 
 “I feel like a lot of people don’t like to do the therapist thing because they think it’s weird, I guess. [But], I feel like, if your kid needs it…it will make them better. So…don’t stop yourself from doing it.… A lot of people think that therapy is for crazy people or something like that…it’s not like that at all.” 26-y-old mother of a 10-y-old boy 
Fear of asking for help or disclosing diagnosis “I feel like sometimes doctors do think parents exaggerate, and I know parents sometimes do, but they shouldn’t just put everybody in the same category…I know a lot of parents are not able or willing to speak to the doctors because of that, because they know that they’re not going to be listened to anyways or heard. They’re just going to be dismissed, so what’s the point sometimes?” 29-y-old mother of an 8-y-old boy 
 “When it comes to the African American community…culturally…a lot of times you’re told to pray, or…you have to be the strong Black woman or…this masculine man…so a lot of times we don’t seek help…and when we do, we’re not taken seriously. They’re dismissive, as if you’re just here because you want the meds.” 43-y-old mother of a 9-y-old girl 
 “Yeah, they say ‘If you have anxiety, depression, or attention-deficit disorder, you’re crazy.’ It doesn’t matter how much you explain to them what it is, it’s honestly better not to say anything at all.” 34-y-old mother of a 10-y-old boy 
 “When I’m talking to somebody else that don’t have any kids, I get negative feedback. So, I just don’t talk about it too much until I get with their therapist.” 62-y-old mother of a 10-y-old girl 
SubcategoryStigmatization and Fear Quotes (Representative Selection)Parent and Child Information
Others blaming or judging parent and/or child “When I’m talking to other people, I feel like I’m being judged…even if they’re not saying it…cause they’ll say something stupid like, ‘Why don’t you do this? Why don’t you…?’ You don’t understand what I’m going through right now, so don’t tell me what I should and should not do.” 42-y-old mother of a 13-y-old boy 
 “Sometimes I feel like I am being blamed, or I’m not…according to other people…I’m not parenting correctly, because she can’t control herself.” 40-y-old mother of a 3-y-old girl 
 “A lot of people it’s like, ‘Oh, you spoil her. You let her do this, you let her do that.’ That’s the only thing I got judged about. It’s letting her get away with things – ‘There were no boundaries in the home.’” 28-y-old mother of an 6-y-old girl 
 “I feel bad because, even though no one has ever told me this, I know that people tend to reject people who suffer from it.” 34-y-old mother of a 10-y-old boy 
 “They started blaming him for everything.… My son is like this because now he’s used to being blamed for anything and everything, and it does not matter what he says. He always gets shut down.” 36-y-old mother of an 8-y-old boy 
Parent blaming themselves or child “It was difficult and scary, because I don’t know. You think, as a mom, that you did something wrong. What are people going to say? Are you sure? You just can’t handle how they are at their age like normal kids. What’s really wrong? You don’t really want to be told that they have ADHD or anything like that.” 29-y-old mother of an 8-y-old boy 
 “For the longest time, because we didn’t know what was going on, we kind of blamed her…I thought she was just being a stubborn kid, and I’m like, ‘Why are you being so…why can’t you just listen?’… you know.” 43-y-old mother of a 9-y-old girl 
 “Sometimes I used to blame myself. Well, maybe it’s because of me because he got ADHD. So, that really just sat on my brain. I really went through some problems with that. He has ADHD because of me.” 51-y-old mother of a 17-y-old boy 
Facing negative attitudes about ADHD treatment “Well they were saying ADHD basically, is a fake diagnosis. That’s sort of like some things they were saying…that was sort of the negative things they were saying.” 28-y-old mother of a 6-y-old girl 
 “The biggest thing was the medications because you start hearing things. They will outgrow it, they don’t want to listen. I’ve heard it all.” 36-y-old mother of an 8-y-old boy 
 “It was what everyone told me. ‘Do not give him medication that is used here so that the teachers do not have too much work from all the children so they want to give him medicine.’” 40-y-old mother of an 8-y-old boy 
 “That’s the main fear. Even in the beginning I was on edge with my son being on the medication. There have been studies that show doctors are quick to give African American children medication for this and that.” 30-y-old mother of a 12-y-old boy 
 “I feel like a lot of people don’t like to do the therapist thing because they think it’s weird, I guess. [But], I feel like, if your kid needs it…it will make them better. So…don’t stop yourself from doing it.… A lot of people think that therapy is for crazy people or something like that…it’s not like that at all.” 26-y-old mother of a 10-y-old boy 
Fear of asking for help or disclosing diagnosis “I feel like sometimes doctors do think parents exaggerate, and I know parents sometimes do, but they shouldn’t just put everybody in the same category…I know a lot of parents are not able or willing to speak to the doctors because of that, because they know that they’re not going to be listened to anyways or heard. They’re just going to be dismissed, so what’s the point sometimes?” 29-y-old mother of an 8-y-old boy 
 “When it comes to the African American community…culturally…a lot of times you’re told to pray, or…you have to be the strong Black woman or…this masculine man…so a lot of times we don’t seek help…and when we do, we’re not taken seriously. They’re dismissive, as if you’re just here because you want the meds.” 43-y-old mother of a 9-y-old girl 
 “Yeah, they say ‘If you have anxiety, depression, or attention-deficit disorder, you’re crazy.’ It doesn’t matter how much you explain to them what it is, it’s honestly better not to say anything at all.” 34-y-old mother of a 10-y-old boy 
 “When I’m talking to somebody else that don’t have any kids, I get negative feedback. So, I just don’t talk about it too much until I get with their therapist.” 62-y-old mother of a 10-y-old girl 
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